Sunday, February 7, 2010

What's Going On

Busy, busy, busy.

Let me start with a chair update. All that I have to say is Arrrrrrrrrrrrrrrrrrrrrrrrrhhhhhhh! Insurance really can be a-holes. Tomorrow I send off all the paperwork and should hear in 15 days their denial. I know, way to be positive, huh? I am okay with it.

"What?" you are saying?

Not too fret. Our chair will be paid for either way. Nope, not out of my pocket. The wonderful people who we order the chair from found us a resource. It is for people like us, who work & pay our bills, but can't get SSDI or Medicaid. We should have our chair by mid March. I am very excited. If Ci.gna steps up, the provider will reimburse the charity. If not, we have MM's chair. A win-win situation. I am so very thankful that we are able to get funding from a wonderful charity. I will be writing a letter & sending pics for sure to them. They will be at the top of my list for people looking for charities to donate to. I must also mention all of my wonderful friends & coworkers who badgered the CEO of the DME place to get her a chair as well. It worked! Something to be excited, happy & positive about.

Another positive- CLARITY. We both got a horrible cold (landed me in the hospital for 5 days), but the deliciousness of clarity that comes after illness. I have spoke of this happening before to her. I don't know what it is, why it is, or how, but it is SWEET! Beautiful glimmer of what she would be without ASD interfering.

Guess what time it is?


Yep, another year has flown by and we are looking at our annual on Tuesday. It was scheduled a few weeks ago, but alas, I was trapped in the hospital fighting off the wheeze.

Now, I am not too nervous. These are getting to be old hat.

BUT, I do have lots of good things to report. Not good for them, but good for us. I am probably going to be retaining the services of an attorney. Can you say "OUT OF COMPLIANCE" big time???? My wonderful, amazing friend who was a special ed major & now a vice prinicpal, is helping me. She said she would do a conference call if needed. Just allow me to high-light a few of the problems we have.

---We signed back in September to have our 3 year re-evals done. We still have not heard about them. We will get them at the meeting. Federal law is 65 business days!

---I asked for the reports prior to the other meeting. Then we rescheduled. I only have 2 reports. I am entitled to them at least 2 days prior to meeting.

---- I was told I could not have one of the reports, but they would go over it with me 30 minutes prior to meeting.

----The wonderful school physcial therapist (sarcasm, sarcasm, sarcasm) did come up with a report. It is the same freakin' report from a year ago. She changed the date only. It still says MM is 5 & in kindergarten! This is the one who says she shouldn't wear her DAFOs to school & should be on a regular ed bus. I am so taking her down. This is MY CHILD'S well-being she is so carelessly messing up. This also, the one who thinks she only needs 30 minutes a MONTH of PT!

--- I have all of this in writing via emails and the reports.

---I am asking for all the anectdotals they share with each other & the data points they collect her goals on. I can almost guarantee it won't be available.

---I will be recording the meeting.

---I am asking for a PC2Go (it is $500) and a program to scan her work. I had to request the AT (adaptive tech) person to be there. They weren't even going to have her! I asked to talk to her back in the meeting & have never heard from her! BS!

My bestest buddy is very confident I have a wonderful case & am excited to get MM what is necessary& appropriate for her to function.

I know this a quick bomb to drop with all of this info. But, as you can see, I am busy, busy, busy getting all of my ducks in a row.


Colleen said...

You get them!!!!

Candace said...

Sounds like you have a very rough road ahead. I hope that you have tons of success and get what your daughter needs! I shudder at thoughts of dealing with s.districts and all those organizations. May explain why we haven't..LOL!

pixiemama said...

Wow - I'm not even sure what to comment on first. 5 days in the hospital? YIKES! The IEP situation? Gasp!

Thanks for checking in...

Ally in Wonderland said...

Wow, on one hand, GO YOU!!!

On the other, I'm reeeeeeeeeally glad I'm not her teacher!!! (although, if I was, you wouldn't be having these get my point...)

Anonymous said...

Hello i am an adult with cerebral palsy so i thought i would say hi I hate the chair battle took ten months to get the last one thanks to an OT
my blog can be found here