Thursday, February 21, 2008

BIG NEWS & Catching up

First of all, I have been remiss for I have been very sick. STILL very sick. Started off with a virus & pneumonia causing my asthma to go haywire & was hospitalized for the week of Feb. 4th. I had a rough time, including having an allergic reaction to one of the few antibiotics I was not allergic to, but am now. My immune system is messed up again. I am also having heart & blood pressure problems. My heart keeps racing & my bp won't come down. It is dangerously high, even on THREE meds. UGH! I have been off work all this time. I am afraid I am going to have a stroke. They might put me back in the hospital this weekend if it doesn't come down. I feel awful, but wanted to post about somethings as well.

MM also got very sick when I was in the hospital. She had a really high fever for several days. Since then, she has been a different child. How you ask? She is acting like a typical 3 year old (now I know she is almost 5, but it is progress). She has lots of eye contact, spontaneous speech & using pronouns, not talking in third person, minimal stims & flapping, doing things for herself, etc. I can't explain it. It is like a light was just turned on. She is also now OFFICIALLY
PEE-PEE trained during the day! She hasn't worn a day pullup since last Friday- so six days! It is wild.

We had our appointment with the physiatrist today. She couldn't believe it was the same child. She gave me a study about how kids with ASD "clear" with a fever. She said enjoy the moment & celebrate, but it will probably go away. I don't care if it does. I can live the rest of my life with this "5 minutes of something wonderful rather than a life time of nothing special". It is enough to sustain me. It feels great to see her acting & doing like a typical child. She also tested her & she has had a bump in her skills with how clear she is. She tested at 36 months rather than the usual 18-24 months, with some 30 month skill. Almost everything was 36 months!

I feel like I am in a dream & don't want to wake up, except for the pounding headache I have from my blood pressure...

I still need to update about our IEP, but that will be for another time.

Saturday, February 2, 2008

Quick Check In

Knee still hurts... MRI on Tuesday.
Did NOT talk about kindergarten at IEP... too much other stuff to address...
Will post more later, no time right now & I am still ticked off about it. Let's just say I cried alot during the meeting. :-(