Monday, January 28, 2008

I've Fallen, but I had to get up...

UGH! I fell over 10 days ago. I was carrying MM down the steps while I had my slippers on. I slipped off the top step & slid down about four twisting my left knee. I saved her though, she did not get hurt in any way. It has only gotten worse- I finally broke down & got an appointment with the doc this morning. They think there is probably something torn in there- I have to have an MRI & get a knee brace. OH JOY! I don't have time for this. She said something about if it is a big tear= surgery & PT, small tear = PT. GREAT! Maybe I can schedule mine while MM has her's....

I was just reading people's blogs & comments about their backs carrying their CP kids. So, here I am, another casualty related to CP :P

Tomorrow is annual IEP for dicussion of what to do about kindergarten. Who has the bail money ready???

Wednesday, January 23, 2008

A Nice Blessing

Being on the road we are on is not easy. However, if we weren't going down this road, I wouldn't have met alot of the people I have. I have friends that I have met in person & on the net because of MM's CP & ASD. I guess it is a reason to be thankful for sure.

I just got off the phone with one of those friends. I was calling to check on her since she has been a little MIA. She had posted a quick blurb about going through a rough spot. In calling to check on her, she made me feel so much better. It is so nice to talk to people who just get it.


Friday, January 11, 2008


That is how I would describe things for us (especially me) lately. Life is just going on around us and I am stuck somewhere in it.

We had a good Christmas. MM was overwhelmed with all the presents she got (we only buy her three, she got tons from everyone else). I had to work Christmas day, but we had a nice little thing Christmas eve. What happened was almost unbelievable. We were at my mom’s eating & then DH went to put the presents out. We told her Santa would come early. He sure did! When we pulled up to the house, Santa (the mail man dressed up) was actually delivering packages with presents! Someone asked her if Santa brought her presents on his sleigh and she replied “No, he drives a mail truck”! LOL…

The bittersweet I am talking about are things like…
THE SWEET- My sister came to visit with her little boy. He is almost two years younger than MM. I was amazed by his skills. He is so funny & cute. I had a blast just watching him & wished we lived closer so I could hang out with him more. My sister was great too. I really miss her & we had a good time just really doing nothing but hanging out.
THE BITTER- MM didn’t want anything to do with him. She was very upset nearly the whole visit. She spent many of the days flapping & withdrawn. It also is such an eye opener to see how far behind she really is. My nephew is passing her easily & she is kind of stuck around 24 months.

THE SWEET- I saw a friend who I haven’t seen in quite some time. Her daughter was born a week after MM. It was great to see her & I loved to hear her stories about her little girl. She climbs trees, she rides a bike without training wheels, she is getting ready for kindergarten.
THE BITTER- Another reminder how far behind MM is. She rides a bike- just an AM-Tryke with lots of help. She is slowly getting there. She can’t climb a tree & the kindergarten part I will address.

THE SWEET- One of my best friends is pregnant! I am so excited! She got pregnant right out of the gate, first try. They just got married in November! What a lucky girl & how lucky I am that she is my friend. She is truly amazing!
THE BITTER- I will never be pg again. We just can’t. Too many risks for me & for the baby. I also had another birthday & I’m not getting any younger. It is so easy for some people & so hard for others.

THE SWEET- IEPs for all the kiddos in MM’s class are coming up. I have heard them talking to the parents when we pick the kids up. Almost all of the them are preparing for the transition to a typical kindergarten class.
THE BITTER- MM’s annual IEP is coming up. We are not preparing for typical kindergarten. She will continue on in a CDC class with some inclusion in the typical kindergarten. All of her classmates (except for one) will be leaving her behind. She is probably the brightest child in class academically, she just has poor motor skills & very poor social skills. We got her report card & she has made very little gains in the last year. She is still stuck where she was a year ago. ***sigh*** I can feel a very long meeting coming on.

I want to add more, but she is standing her having a meltdown about her DAFOs & has a poopy pull-up. I know I have been MIA here, but I have been trying to keep up with all of the blogs I love. Sounds to me like everyone else has a lot of introspection going on as well! Take care & hope to be back soon.