I can't believe it. As I am typing this, the Meghatron has turned 6 today. She has had a great day, enjoying her favorite pizza, cake & presents.
In some ways, time has flown by so quickly. I want to slow things down. She is growing up way too fast, getting so big. Savor each moment, like yesterday. We met one of our dear friends at a restaurant. They brought MM an ice cream with a candle. She blew out the candle. I asked her if she made a wish. She said, "Yes, I wished a happy birthday to me". We all laughed. She laughed cause we laughed, even if it was her canned laughter. (I am proud that she is attempting to pick up on social cues)
In other ways, time has moved so slowly. I can remember the day she was born like it was yesterday. I remember her time in NICU and how raw & numb I felt. I remember the pain my heart felt when she got diagnosed with CP then ASD. I can't forget all the hundreds of hours we have spent in therapy, doing therapy, going to & from therapy. For me, her life has been constantly measured, scrutinized every few months. We measure moments by "inch stones, not milestones" as one of the fellow bloggers says. It is at these times that her life seems to be moving so slowly.
Although this hasn't been the six years I envisioned, it has been wonderful. She is growing and making wonderful progress. Her brains, humor, charm & looks are incomparable. I love her so much & can't wait to see what the next 6 years will bring.
This is our little family's journey. MM (our only daughter) has mild cerebral palsy & autism spectrum disorder. She also has an undiagnosed auto immune disorder.
Come with us as we are learning to cope, navigating the system and riding the rollercoaster of having a child with special needs with a large amount of humor & sarcasm thrown in.
Life was all fun & games TILL THE SHORTBUS pulled up in front of our house...
From Wikipedia "Short Bus"
Short buses can be used by smaller school districts on routes with few students to pick up. However, a more prominent use is to transport small numbers of children to and from vocational school, or schools for children with emotional disorders or mental disabilities. Because of this second use of the buses, "taking the short bus" or other phrases to that effect has become a pejorative slang term used to imply that someone has a mental retardation or emotional problems.
I am a mom, a wife, a professional snot getter. I am blessed to have a wonderful mother who watches my daughter whenever I work and does all of the "extras" that MM needs. I am considered a "damn yankee" since I have lived in the south for 14 years now. I will always be a buckeye (a useless nut) at heart. It took me a long time to adjust to southern life, but I like it.