Wednesday, October 14, 2009

In Typical M Family Style

As you know, whenever I take time off, something happens.

We are not on our way to the buckeye state right now. MM was sent to school. Why are we not on the road? Nana is sick. Yep. Nana, who NEVER gets sick, has a bug. I don't know if it is HoNo, but she is definitely sick. Fever, achy, vomiting. Blah! I am over here nursing her right now & willing her to get better.

I reeeeeeeeeeaaaaaaaaaaaaaaaaaalllllllllllllllllllllllllllllllllllllllllly want to go see my sister & grandma. I just don't think I can handle MM alone on a road trip. I don't know how she would do. She gets easily stressed out by my pure boy nephew who bounces around with endless energy. She would be stressed from a change in scenery. She would be stressed from seeing people she hasn't seen in years. I would have no one to lean on to help when my patience are thin. My sister would try to help, but MM doesn't know her that well.

I am afraid of being alone with my child away from home.

That is such a sad statement.
Thanks for nothing Autism.

Monday, October 12, 2009

Still Here

Long time, no posts, eh? Been busy & just not feeling like typing much.

First of all, MM survived the HoNo virus. Many days of high fever, lots of vomiting, lots of refusing to drink & even more defiance with taking Tami.flu. She missed a whole week of school. I did not get it. People were freaking out cause she had it. Everyone seems to forget that she DOES have an undiagnosed autoimmune disorder. That is why her's was so bad. We did not get the wonderful clearing that comes after she has a fever. Can't say I wasn't a little disappointed in that. The important thing is that we recovered.

She has decided to participate in a sporting activity. We offered everything under the sun: soccer, cheerleading, gymnastics, etc. What does she pick? Baton twirling or as she calls it "majorettes". We found a really kind lady who teaches here in town. Guess what? She LOVES it. She goes Tuesday evenings. It has been so good for her. All I can think of is where else can you get therapy for $7/ 30 minute session. She must work on motoring planning, fine motor with her hands, gross motor with the routines, tolerating noise of music & echoes in the gym, socialization with the other girls & letting them get into her space. It works all areas for the bargain price of $7! Can't beat it! I have a video, although it is grainy. Any one wanting to see it? Let me know & I will post it.

IEP. It went well. Yes, you read that right. IT WENT WELL. I thought there was going to be nashing of teeth, pulling of hair & tears. Nope. Not at all. The regular ed teacher did not understand her IEP. She does now. The OT & SL/T were spot on in helping to get her what she needs. She now has her very own special modified & adapted desk. She has a label maker, a computer, a new program for typing & will be getting her assignments changed to the computer. They are finally recognizing she has dyspraxia in regards to writing. It's not that she doesn't know, she just can't get her hands to do what her brain wants. Setting these things in place has made it much easier to send her to school. She was not wanting to go & melting down about it. Now, not any more problems. We addressed the bus issues & they are working on the lunch room problems. I really feel the therapists that have worked with MM really have a good grasp on things. They know us now & know we pull no punches, are not lazy & really care about her well being. They complimented us over & over on how well she is doing & how hard we worked with her over the summer. Nice. BUT, does not make up for them not giving her ESY! The principal is not my favorite person. She tries to stonewall so much & I know it is based on money. She kept telling us that they do not make the things we are asking for. She is full of bull & I called her on it. I know they do cause I have friends whose children one county over have it! DUH! Also, we researched after finding it out! I think I might ask for HER boss to sit in on the next meeting. They are also going to be doing her re-evals cause it has been over 3 years since she entered the public school system. Times flies when you are having fun-NOT! We will see what their results net.

Work has been hell with all the flu. I am exhausted when I get home. It is only going to get worse as the season goes. I will survive. BUT I am off for the next two weeks! Woohoo! I am taking MM on a little road trip the old homestead to visit family & friends. I hope she does okay. We are then having a Halloween party too. I dont know why I take on so much sometimes, but hey- you only live once!

Thanks for checking in on us. Cheapskate mom, I need my code for my button still! LOL She makes some really cute buttons for people to grab for your blog! It is a bargain too! Check out the link! Later!